RUN stands for Rare & Undiagnosed Network. This is a group of advocates, patients, families, researchers, healthcare providers who share the same mission and vision to bring genome sequencing into clinical practice to help undiagnosed patients and better understand these conditions as they all work together towards better lives for affected individuals and their families. Find stories, inspiration, and support.
, TX
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Advocacy, Disability Specific, Emotional Support, Other |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up |
Disability Categories | Developmental Disability, Genetic or Congenital Disorder, Intellectual Disability, Learning Disability, Medical Condition, Mental Health Disorder, Physical Disability |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | |
Is this a statewide service? | yes |
Website | http://rareundiagnosed.org |
Contact Name | Gina Szajnuk |
Email Address | [email protected] |
Phone Number | 310-883-4353 |