Hosted by trusted patient advocates, RareConnect is a place where rare disease patients can connect with others globally. RareConnect is a safe environment where privacy is respected and where trusted information is shared via real patient representatives.
Patient-led
RareConnect is a patient-led initiative. Patient organisations partner with RareConnect, itself an international patient organisation, to create communities and provide moderators from within their network.
Experienced moderators
Each community on RareConnect is moderated by a person living with a relevant rare disease and linked to a trusted patient group. Furthermore all moderators are trained in the use of our online communities charter and supported on a daily basis by a team of community managers.
, TX
Accessible Location: No
Type of Organization | online support |
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Categories | Emotional Support, Medical, Other |
Services offered in Spanish? | yes |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Genetic or Congenital Disorder, Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | |
Is this a statewide service? | yes |
Website | https://www.rareconnect.org |
Contact Name | |
Email Address | [email protected] |
Phone Number |