Finding resources, support, and other services we need to help our children with disabilities can be very challenging. Often when we do find an organization or service, we think we’re the last to hear about it. It’s easy to see other families and assume they know all about that great support group you found, or Medicaid waivers, or whatever. Many times, they don’t.
Categories: Family Support
As I realize my 15-year-old isn't a child anymore, it's hard not to continue seeing him as my baby—no matter the age, the gender, the disability.
Categories: Family Support
Recent events, both personal and more widespread, reminded me of the need to be prepared for an emergency. Families of kids with disabilities can start now to prepare for future emergency needs.
Categories: Family Support
There are days when I want to give up and resign from being the mom. But I don’t. And here is why.
Categories: Family Support
Sibling birth order creates family dynamics, but in some cases, the birth order changes when a child with a disability is added to the family. So don’t always believe in the typical birth order myths.
Categories: Family Support
The older my son gets, the more I realize that he is routine driven. Wake up is at the exact same time. Meals have to be at the exact same time. Naps have to be at the exact same time. We can deviate from the routine slightly, provided that the deviation isn’t severe…but for the most part, we are driven by routine.
Categories: Family Support
Wheelchairs must have regular adjustments for a growing child. Some you can do at home, others need input and help from therapists, doctors, and mobility providers.
Categories: Diagnosis & Health Care
Here are some helpful tips and resources for raising a child with a disability from a mom who’s raised two!
Categories: Family Support
One mom discusses her frustration when people don’t listen to her daughter who uses a communication device.
Categories: Family Support
Most of us look forward to breaks in our routine. It’s the time to sleep in, clean out closets, catch up on movies, and visit with friends. I welcome the chance for all of this, but for my son, it’s not that simple.
Categories: Family Support