Communicating with your child’s doctors, nurses, therapists, etc. is always important. When talking about things your child needs or dealing with issues you feel may be harmful for your child, it’s easy to get emotional. Being able to build a healthy relationship with your child’s care team and communicate openly and honestly is key. Here are a few tips that may help.
Categories: Diagnosis & Health Care
My children and I have been so lucky to have this man in our lives. He is the greatest husband and father.
Categories: Family Support
Right after losing a child, everyone rushes to comfort the grieving parents. Eventually, most people have to get back to their lives, but the parents continue to grieve. Here is a glimpse into some of the emotions, struggles and triumphs shared by one grieving mother.
Categories: Family Support
When you get good news about your child who has a degenerating medical condition, the joy you experience is amazing.
Categories: Diagnosis & Health Care, Family Support
Parents must decide when or whether to tell their child about their disability.
Categories: Family Support
Presuming competence means assuming a child with a disability can understand just like anyone else. It means that you don't underestimate the child. Here's why this matters so much.
Categories: Family Support, Education & Schools
Here is one mom’s story about the personal changes she made to become an advocate for their child.
Categories: Family Support
It is personally rewarding to see how much you can help another person through offering your time, energy, and resources.
Categories: Family Support
There is a great resource available on Facebook called “Special Books by Special Kids.”
Categories: Family Support
It can be easier said than done, but focusing on the "cans" and "haves" as opposed to the "cannot" and "don't haves" can make a huge difference in everything you do.
Categories: Family Support