I was lucky to be able to get my daughter in and out of our vehicle throughout her life. However, many children with medical complexity require ambulance transportation to get to and from appointments.
Categories: Diagnosis & Health Care
Finding the person with whom you and your child can share your most vulnerable feelings is a tough but worthwhile process.
Categories: Diagnosis & Health Care, Family Support
In addition to my son having disabilities, I also have several medical conditions that can land me in the hospital at any given minute. Being as prepared as possible is incredibly important for our family.
Categories: Diagnosis & Health Care
We forget how the medical world has changed during the COVID pandemic.
Categories: Diagnosis & Health Care
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.
Categories: Diagnosis & Health Care, Family Support
Giving yourself permission to take the time you need when you are ill can bring about good, healthy outcomes.
Categories: Diagnosis & Health Care
My son is 7-years-old and still drinks from a bottle. We didn’t plan this, and we have tried to work around it. But the bottle gives him the flow control he needs to digest liquids properly.
Categories: Diagnosis & Health Care, Family Support
Sometimes we all need to vent, even your little one’s G-tube.
Categories: Diagnosis & Health Care
When there is a language barrier, parents have an even tougher time understanding medical terminology.
Categories: Diagnosis & Health Care
Parents must educate themselves about each new medication and weigh the side effects versus the benefits.
Categories: Diagnosis & Health Care