The group offers peer-to-peer support and information sharing for individuals affected by Fabry Disease.
Life With Fabry is Ben’s Friends Facebook landing page for our Peer to Peer Patient Community at: https://www.livingwithfabry.org/. Life With Fabry is an online patient community for patients and caregivers affected by Fabrye. This is a great place for sharing thoughts, advice, encouragement, laughs, and heartaches. All of this on a platform where the information base and discussions are searchable. Find what you want and who you need, when you need it.
1101 W. 34th Street, #132
Austin, 78705, TX
Accessible Location: yes
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support, Social Media, Other|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up|
|Disability Categories||Genetic or Congenital Disorder|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses|
|Is this a statewide parent group?||yes|
|Email Address||[email protected]|