The group offers peer-to-peer support and information sharing for individuals affected by Fabry Disease.
Visit the online community at http://www.livingwithfabry.org/ for safe and supportive connections with people who understand what you are experiencing. ONLY actual patients welcome! This is a great place for sharing thoughts, advice, encouragement, laughs, and heartaches. All of this on a platform where the information base and discussions are searchable. Find what you want and who you need, when you need it.
Online Only Parent Group
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support, Social Media, Other|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages, Birth - 3, 3 - 5, 6 - 11, 12 - 14, 15 - 21, 22 and up|
|Disability Categories||Genetic Disorder|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide parent group?||Yes|
|Email Address||[email protected]|