The group offers peer-to-peer support and information sharing for individuals affected by Fabry Disease.
Life With Fabry is Ben’s Friends Facebook landing page for our Peer to Peer Patient Community at: https://www.livingwithfabry.org/. Life With Fabry is an online patient community for patients and caregivers affected by Fabrye. This is a great place for sharing thoughts, advice, encouragement, laughs, and heartaches. All of this on a platform where the information base and discussions are searchable. Find what you want and who you need, when you need it.
1101 W. 34th Street, #132
Austin, 78705, TX
Accessible Location: yes
Type of Organization | Nonprofit (501c3) |
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Categories | Disability Specific, Emotional Support, Social Media, Other |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up |
Disability Categories | Genetic or Congenital Disorder |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | |
Is this a statewide parent group? | yes |
Website | https://www.facebook.com/pages/Life-with-Fabry-Online-Support-Group/317666254947669 |
Contact Name | |
Email Address | [email protected] |
Phone Number |