"At Rettsyndrome.org, our mission is to accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge, and connectivity. We advocate and raise awareness about Rett syndrome so the scientific and medical community, policymakers, educators, caregivers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals living with Rett syndrome on a daily basis."
They can help provide Parent-approved resources for Rett families, Rett Syndrome Handbook containing all the information you need for your journey- available in PDF version, Get 1:1 Support and connect with a parent volunteer to learn about the resources in your area.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Genetic Disorder, Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|
|Email Address||[email protected]rg|