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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
Giving birth to a baby who needs to spend time in the Neonatal Intensive Care Unit (N.I.C.U.) is incredibly difficult. Two parents who experienced having a baby in the N.I.C.U. share their frustrations, fears, and strategies for dealing with the situation.
Related Content: When You Leave the Hospital Before Your Baby
When Alan turned 19, his mother Rosalba noticed a change in his mental health. With the help of their doctor, Alan was diagnosed with bipolar disorder. This diagnosis was a critical step in caring for Alan and helping him reclaim his zest for life. Along the way, Rosalba and her family received support from other parents of children with disabilities that let her know she was not alone.
Emergencies can be even harder to navigate for parents of a child with a disability, especially when their child needs special healthcare equipment. For Maureen and her son George, who is paralyzed from the neck down and requires total care, emergency preparedness entails much more than stocking food and water. Parents of children with disabilities must plan ahead and prepare for worst-case scenarios. Maureen shares her story of how she was able to find backup power sources to keep George’s healthcare equipment working during a power outage.
Answering the tough questions now might save you a lot of pain and trauma later. A mother and father talk about why knowing the answers to the tough questions was so important when they lost their own son.