Are you moving to Texas or thinking about it? Welcome!
If you have a child with a disability or special health care needs, you probably have many questions about what to expect. You may want to know about your insurance, medical care, services, school, equipment and more.
Change is hard, especially a big move, and every state is different. Not all types of services are available in every state. We’ve talked to other parents and have some advice to help you prepare.
Parents of children with disabilities or special health care needs often say how much it helps them to find parents like them. Sometimes they find other parents in person, but in a big state like Texas, there are other ways to feel less alone. Online groups can also connect parents with other parents.
Other parents might have tips, ideas and answers for you. They might know what doctor or specialist you can visit. They might know who to contact at a certain program or who to call if your child isn’t getting needed services. They can be there to listen. If you don’t know many people in Texas, check out our Connecting with Other Parents page for ideas on where to start.
Statewide organizations like Texas Parent to Parent and Partners Resource Network connect parents and with resources, groups, events and more.
We asked parents who moved here to share their surprises and challenges.
We love the weather here. It’s warmer. I don’t miss cleaning snow off my son’s wheelchair!
I talk to a lot of parents about getting plugged in. Here, the waiting lists are so much longer – 10 years or more. You really have to be ready to manage insurance and services on your own.
We had to start all over on waiting lists and learn a new alphabet soup of program names and acronyms.
It feels more like a community here. People have been more accepting in a lot of ways and it’s OK to have kids that are different. I’ve found it to be very family-friendly.
Texas has several services and programs for people with disabilities and special health care needs. Here is a list to help get started:
Even if your child is part of a federal program (one offered across the country) like Medicaid or a Medicaid waiver program, you’ll need to sign up again when you get to Texas. These services do not automatically transfer. Each state has its own rules and lists.
In Texas, we call our waiting lists “interest lists.” The interest lists for getting services through Medicaid waiver programs are long. Sometimes it takes 10 to 18 years. It’s important to sign up as soon as you’re living here.
When it comes to education, children with disabilities and special health care needs have legal rights every state must follow. Our Special Education 101 page and our Education and Schools section have more information about these laws, your child’s rights and how things work in Texas.
Here are a few more things to know about moving and the special education process here:
The Children with Special Health Care Needs Services Program created this list (PDF) of state programs and educational websites to offer other ways to access benefits through HHSC and provide access to additional services.
Texas is unique. Our services, community programs and the many other parents living here can help you settle in, find your way and feel some of that Texas friendliness.
Sign up for Medicaid waiver interest lists right away, they can be long! See our page on the Medicaid waiver programs to learn how to sign up.