The Thalassemia Support Foundation (TSF) voluntary organization founded by patients, parents, loved ones, and friends affected by thalassemia. The foundation provides hope, comfort and encouragement to those battling this disorder. At the heart of the organization is a strong desire to help improve the quality of life for all patients with thalassemia. TSF volunteers time to organize conferences, raise funds to educate the community, ensure patients and parents know the latest in care, and donate to the work of researchers. The foundation maintains a strong relationship with the medical community that provides diagnoses, treatment and care. Thalassemia is a genetic blood disorder that affects the production of the hemoglobin, the oxygen carrying component of the red blood cell.
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PO Box 26398
Santa Ana, 92799, CA
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Disability Specific, Emotional Support |
Services offered in Spanish? | yes |
Newsletter? | yes |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Genetic or Congenital Disorder, Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Alpha Thalassemia, Beta Thalassemia |
Is this a statewide service? | yes |
Website | https://rarediseases.org/non-member-patient/thalassemia-support-foundation/ |
Contact Name | contact form online |
Email Address | [email protected] |
Phone Number | 617-249-7300 |