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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
Niemann-Pick Disease Type C (NPC) is a rare, genetic neurodegenerative disease that currently has no cure. However, as the science of this disease becomes better understood, new and promising treatments are being developed. The Firefly Fund’s core programs serve patients, families and the clinical community with essential resources and support, advancing knowledge about the complexities of rare diseases. Firefly Fund is committed to filling unmet needs in the rare disease community and not duplicating good work that has already been done. Attend this event to support funding for reasearch and education for NPC.
204 E Brazos Hall
Austin, 78701, TX
Accessible Location: Yes
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Dance, Social Event |
| Services offered in Spanish? | No |
| Newsletter? | No |
| Fee to Attend? | yes |
| Financial Assistance May Be Available | No |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Genetic or Congenital Disorder, Medical Condition |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Website | https://fireflyfund.org/event/firefly-dreams-gala-2026/ |
| Online Registration URL | https://interland3.donorperfect.net/weblink/WebLink.aspx?name=E347875&id=15 |
| Contact Name | |
| Email Address | suzannarosenblatt@gmail.com |
| Phone Number |