The group provides the opportunity for more direct communication among individuals with Alport Syndrome, their family, and friends. The group is monitored by ASF to ensure that the information shared is positive, supportive, and accurate.
All members are encouraged to register for the newsletter and other communications on events and clinical trials at www.alportsyndrome.org/registration/.
Accessible Location: No
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Social Media, Other|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up|
|Disability Categories||Genetic or Congenital Disorder|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses|
|Is this a statewide parent group?||yes|
|Email Address||[email protected]|