The group provides the opportunity for more direct communication among individuals with Alport Syndrome, their family and friends. The group is monitored by ASF to ensure that the information shared is positive, supportive, and accurate.
All members are encourages to register for the newsletter and other communications on events and clinical trials at www.alportsyndrome.org/registration/.
Online Only Parent Group
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Social Media|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages, Birth - 3, 3 - 5, 6 - 11, 12 - 14, 15 - 21, 22 and up|
|Disability Categories||Genetic Disorder|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide parent group?||Yes|
|Email Address||[email protected]|