We are an all volunteer national and international support group specifically for fatty oxidation disorders. As a 501c3 non-profit corporation [Tax ID# 83-0471342], we raise funds for educational and networking services and programs, as well as for future regional meetups/seminars for our families and free of charge face-to-face or online grief support for bereaved parents, families and others living with loss due to death from any cause.
Family stories are shared, questions are answered, nutrition information is discussed, and medical and pharmaceutical updates are offered.
They also offer pro-bono face-to-face or online grief support for bereaved parents, families, and other adults living with loss.
This is a partial list of FOD's addressed on this site:
PO Box 54
Okemos, 48805, MI
Accessible Location: No
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages|
|Disability Categories||Medical Condition|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses||Medium-chain acyl-CoA dehydrogenase Deficiency|
|Is this a statewide parent group?||yes|
|Contact Name||Deb Lee Gould|
|Email Address||[email protected]|