Fatty Oxidation Disorder (FOD) Family Support Group

We are an all volunteer national and international support group specifically for fatty oxidation disorders. As a 501c3 non-profit corporation [Tax ID# 83-0471342], we raise funds for educational and networking services and programs, as well as for future regional meetups/seminars for our families and free of charge face-to-face or online grief support for bereaved parents, families and others living with loss due to death from any cause.

Family stories are shared, questions are answered, nutrition information is discussed, and medical and pharmaceutical updates are offered.

They also offer pro-bono face-to-face or online grief support for bereaved parents, families, and other adults living with loss.

This is a partial list of FOD's addressed on this site:

• Carnitine Transport Defect (Primary Carnitine Deficiency)
• Carnitine-Acylcarnitine Translocase (CACT) Deficiency
• Carnitine Palmitoyl Transferase I & II (CPT I & II) Deficiency
• Very Long Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency
• Long Chain 3-Hydroxyacyl-CoA Dehydrogenase (LCHAD) Deficiency
• Trifunctional Protein (TFP) Deficiency
• Medium Chain Acyl-CoA Dehydrogenase (MCAD) Deficiency
• 2,4 Dienoyl-CoA Reductase Deficiency
• Short Chain Acyl-CoA Dehydrogenase (SCAD) Deficiency
• Short Chain L-3-Hydroxyacyl-CoA Dehydrogenase (SCHAD) Deficiency (now called 3-Hydroxy Acyl CoA Dehydrogenase Deficiency HADH)
• Electron Transfer Flavoprotein (ETF) Dehydrogenase Deficiency (GAII & MADD)
• 3-Hydroxy-3 Methylglutaryl-CoA Lyase (HMG) Deficiency
• Unclassified FODs

Location

PO Box 54
Okemos, 48805, MI

Accessible Location: No

Details

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