FPPMD’s Connect program launched with its first location in New Jersey at the end of 2008. Since then, we’ve expanded to more states and are gearing up to add additional groups. A Volunteer Coordinator(s) is chosen to head up each of PPMD’s Connect locations, and groups are required to hold in-person family/parent get togethers and maintain consistent communication with their groups throughout the year.
PPMD’S CONNECT GOALS:
Find a group near you. Contact [email protected] or call 800-714-5437.
South Texas Coordinator: Rachel Poysky, [email protected] and Coordinator: Erin Bullers, [email protected] North Texas Coordinators, Stefanie Killian, [email protected] and Debbie Dupree, [email protected]
You can also join their Facebook Groups:
South Texas: https://www.facebook.com/groups/152629208150721/
Accessible Location: No
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages|
|Disability Categories||Medical Condition|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses||Duchenne Muscular Dystrophy|
|Is this a statewide parent group?||yes|