Parent Project Muscular Dystrophy / PPMD’s Connect Program

FPPMD’s Connect program launched with its first location in New Jersey at the end of 2008. Since then, we’ve expanded to more states and are gearing up to add additional groups. A Volunteer Coordinator(s) is chosen to head up each of PPMD’s Connect locations, and groups are required to hold in-person family/parent get togethers and maintain consistent communication with their groups throughout the year.

PPMD’S CONNECT GOALS:

• Family Mentoring: To help local and regional families better understand the diagnosis of Duchenne or Becker muscular dystrophy and connect them with local resources.
• Grassroots Outreach: To support national awareness and advocacy campaigns.
• Fundraising: To support PPMD research, advocacy, care, and education programs.

Find a group near you.  Contact [email protected] or call 800-714-5437.

South Texas Coordinator: Rachel Poysky, [email protected] and Coordinator: Erin Bullers, [email protected] North Texas Coordinators, Stefanie Killian, [email protected] and  Debbie Dupree, [email protected]

You can also join their Facebook Groups:

South Texas: https://www.facebook.com/groups/152629208150721/

North Texas: https://www.facebook.com/groups/ppmdconnectnorthtexas/

Location

Online Only Parent Group

Details

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