Parent Project Muscular Dystrophy / PPMD’s Connect Program

PPMD’s Connect is the official family outreach program of Parent Project Muscular Dystrophy. PPMD’s Connect groups serve as regional points of contact for families and individuals affected by Duchenne and Becker.

PPMD’S CONNECT GOALS

• Family Mentoring: To connect families with local resources, help them better navigate the diagnosis of Duchenne or Becker, and provide ways to connect with other families both in-person and online.
• Outreach Opportunities: To participate in national awareness and advocacy campaigns.
• Fundraising Opportunities: From do-it-yourself events to endurance races, there’s a way for everyone to make a difference and support PPMD’s mission.

PPMD’s Connect locations, and groups hold in-person get-togethers and serve as a local point of contact for families. Each group also has Facebook group to allow families to seek support and connection online.

PPMD’s Connect program now includes Siblings! PPMD’s Sibs Connect actively engages individuals that have siblings with Duchenne and Becker muscular dystrophy, and fosters connecting with other siblings, sharing concerns and ideas, and supports siblings at every step of their journey. The group is run by siblings, for siblings and for now is geared toward those ages 16 and older. 

South Texas: https://www.facebook.com/groups/152629208150721/

North Texas: https://www.facebook.com/groups/ppmdconnectnorthtexas/

Location

1012 14th Street, NW, Suite 500
Washington, 20005, DC

Accessible Location: No

Details

Type of Organization	Nonprofit (501c3)
Categories	Disability Specific, Emotional Support
Services offered in Spanish?	No
Newsletter?	yes
Child Care Available?	No
Age Range	All Ages
Disability Categories	Genetic or Congenital Disorder, Medical Condition
Does this organization belong to all disabilities?	No
This organization belongs to these diagnoses	Duchenne Muscular Dystrophy
Is this a statewide parent group?	yes
Website	https://www.parentprojectmd.org/get-involved/connect/find-a-local-connect-group/
Contact Name
Email Address	[email protected]
Phone Number	800-714-5437

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