PPMD’s Connect is the official family outreach program of Parent Project Muscular Dystrophy. PPMD’s Connect groups serve as regional points of contact for families and individuals affected by Duchenne and Becker.
PPMD’S CONNECT GOALS
PPMD’s Connect locations, and groups hold in-person get-togethers and serve as a local point of contact for families. Each group also has Facebook group to allow families to seek support and connection online.
PPMD’s Connect program now includes Siblings! PPMD’s Sibs Connect actively engages individuals that have siblings with Duchenne and Becker muscular dystrophy, and fosters connecting with other siblings, sharing concerns and ideas, and supports siblings at every step of their journey. The group is run by siblings, for siblings and for now is geared toward those ages 16 and older.
South Texas: https://www.facebook.com/groups/152629208150721/
North Texas: https://www.facebook.com/groups/ppmdconnectnorthtexas/
1012 14th Street, NW, Suite 500
Washington, 20005, DC
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Disability Specific, Emotional Support |
Services offered in Spanish? | No |
Newsletter? | yes |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Genetic or Congenital Disorder, Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Duchenne Muscular Dystrophy |
Is this a statewide parent group? | yes |
Website | https://www.parentprojectmd.org/get-involved/connect/find-a-local-connect-group/ |
Contact Name | |
Email Address | [email protected] |
Phone Number | 800-714-5437 |