PBSN is a 501 (c)(3) nonprofit organization dedicated to supporting those who were born with Eagle-Barrett syndrome, more commonly referred to as prune belly syndrome. They advocate for a greater awareness of PBS among the general public and the healthcare community. They work closely with those who have PBS as well as their family, friends, and entire support network. Part of their goal is to raise awareness and educate the general public in regards to prune belly syndrome as well.
PO Box 16071
Philadelphia, 19154, PA
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Conferences, Disability Specific, Emotional Support, Medical, Social Media, Other |
| Services offered in Spanish? | No |
| Newsletter? | No |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Medical Condition |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide parent group? | yes |
| Website | http://www.prunebelly.org |
| Contact Name | |
| Email Address | info@prunebelly.org |
| Phone Number | 855-275-7276 |