22q Central provides education for the medical community on 22q Deletion Syndrome / VCFS / DiGeorge Syndrome, provides support for affected families, resource support and support groups. It is a parent run support organization started in 1997 with just a handful of families who had children with what is now known as Emanuel Syndrome. Currently supporting over 2000 families in all corners of the world, who have many different chromosome 22 disorders.
22q Central offers basic information on the main chromosome 22 disorders on the website, but mostly they are about connecting and learning from each other on Facebook. You'd be amazed what parents can learn from each other. There is a wealth of information between us all.
1129 Carolina Gardens Ave.
Fuquay-Varina, 27526, NC
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Conferences, Disability Specific, Emotional Support, Health & Fitness, Medical, Training |
| Services offered in Spanish? | No |
| Newsletter? | No |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Developmental Disability, Genetic or Congenital Disorder, Intellectual Disability, Learning Disability, Medical Condition, Mental Health Disorder, Physical Disability |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | http://www.c22c.org/ |
| Contact Name | Murney Rinholm |
| Email Address | usinfo@c22c.org |
| Phone Number | 919-762-7979 |