ASAP has two official Face book pages, one is open for the public while the other is a closed page so only members can see post. The closed page allows for anonymity. Several other pages have branched off to deal specifically with individual needs, ie ASAP Parents Page, ASAP Kids for a Cure, Syringomyelia Support, etc.
They also have virtual telephone support group, online message board as well as listserv.
To find the right support for you consult: https://asap.org/find-support/
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support, Other|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Medical Condition, Physical Disability|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses||Chiari Malformations|
|Is this a statewide service?||Yes|
|Email Address||[email protected]|