The Association for Glycogen Storage Disease provides education, resource support, financial assistance, scholarship opportunities and emotional support connections for individuals with GSD and their families.
The Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases.
This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
1542 Flammang Dr.
PMB 1004
Waterloo, 50702, IA
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Conferences, Disability Specific, Emotional Support, Financial, Training |
| Services offered in Spanish? | No |
| Newsletter? | No |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Medical Condition |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | http://agsdus.org/ |
| Contact Name | Kim Burney |
| Email Address | info@agsdus.org |
| Phone Number |