Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized as a 501©(3) non-profit, Ben’s Friends is a grassroots organization run by patients for patients. It is not a top-down, “expert advice” experience but a community offering peer to peer support. The value of this approach is evidenced by our hundred volunteer moderators, who are either patients themselves or relatives of patients, who believe in the mission and are willing to invest their time and share the knowledge and insights they have gained with members arriving daily in need of help.
, TX
Accessible Location: No
Type of Organization | Other |
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Categories | Disability Specific, Emotional Support, Social Media |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Genetic or Congenital Disorder, Medical Condition, Mental Health Disorder, Physical Disability |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Atrial Septal Defect (ASD) |
Is this a statewide service? | yes |
Website | atrialseptaldefectsupport.org |
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