Their website provides information on research, clinical trials, assistance with providing a medical provider, a guide on durable medical equipment, information for families that have just received a diagnosis and more.
CureDuchenne breaks the traditional charitable mold and balances passion with business acumen. Their innovative venture philanthropy model funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, this organization drives real change for those with Duchenne muscular dystrophy and their loved ones.
The CureDuchenne one-to-one program provides meetings with scientists, physical therapists, Duchenne parents, fundraising team and family support resource coordinators. Email them at [email protected] to set up a time that works with your schedule. Together we will cure Duchenne muscular dystrophy!
100 Bayview Circle, Suite 5600
Newport Beach, 92660, CA
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Advocacy, Disability Specific, Financial, Medical, Other |
Services offered in Spanish? | No |
Newsletter? | yes |
Child Care Available? | No |
Age Range | All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up |
Disability Categories | Genetic or Congenital Disorder, Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Duchenne Muscular Dystrophy |
Is this a statewide service? | yes |
Website | https://cureduchenne.org/ |
Contact Name | |
Email Address | [email protected] |
Phone Number | 949-872-2552 |