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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
Their website has information about their non-profit and on Niemann-Pick Type C disease.
The inspiration behind the Firefly Fund came after parents, Pam and Chris Andrews, discovered that both of their daughters, Belle, age six, and Abby, age two, had Niemann-Pick Type C1(NPC1) in early 2016. NPC1 is a progressive neurodegenerative disease that attacks every cell of the human body and has a lifespan of 12-20 years.
P.O. Box 92616
Austin, 78709, TX
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Disability Specific, Emotional Support, Financial, Medical, Training, Volunteer Opportunity, Other |
| Services offered in Spanish? | No |
| Newsletter? | No |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Genetic or Congenital Disorder, Medical Condition |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | http://www.firefly.fund/ |
| Contact Name | |
| Email Address | [email protected] |
| Phone Number | 512-619-4758 |