Their website has information about their non-profit and on Niemann-Pick Type C disease.
The inspiration behind the Firefly Fund came after parents, Pam and Chris Andrews, discovered that both of their daughters, Belle, age six, and Abby, age two, had Niemann-Pick Type C1(NPC1) in early 2016. NPC1 is a progressive neurodegenerative disease that attacks every cell of the human body and has a lifespan of 12-20 years.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Emotional Support, Financial, Medical, Trainings, Volunteer Opportunity, Other|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Genetic Disorder, Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|