Angelman syndrome therapeutics are being developed on a global scale, FAST is working to make sure communities across the world are organized and prepared to participate in studies for potential therapeutics. FAST is committed to bringing the Angelman syndrome community the most current updates on research and clinical trials. Hear from each country’s FAST chairperson in this video and learn more about how they are all advancing Angelman syndrome research and clinical trials.
"Their sole mission is to cure Angelman syndrome. That’s why FAST brought together a multidisciplinary team of more than two-dozen scientists from top research universities and pharmaceutical companies. These men and women are the nation’s foremost authorities on Angelman syndrome (AS), and they have joined forces on a focused path to a cure."
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set the agenda for the therapeutic landscape for AS and help to accelerate it, from funding promising research at the academic level all the way to starting companies; create the necessary infrastructure outside of drugs and their development, from projects like our global registry and newborn screening to preparing for regulatory approval processes and advocating for insurance coverage; and we activate and educate those in the worldwide AS community interested in and committed to clinical trials, and what the future of drug development will be for our loved ones.
PO Box 40307
Austin, 78704, TX
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Disability Specific, Emotional Support, Other |
| Services offered in Spanish? | No |
| Newsletter? | yes |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Genetic or Congenital Disorder |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | https://cureangelman.org/ |
| Contact Name | |
| Email Address | info@CureAngelman.org |
| Phone Number | 866 783-0078 |