Global Genes’ story began with their loved ones. They are the friends, family and supporters of patients close to us who are affected by rare disease. They understand the confusion, the overwhelming experience of the unknown and the feelings of isolation all too well. And they know they aren’t alone. That’s the reason Global Genes was born – to connect, empower and inspire the rare disease community.
Global Genes provides awareness and education on rare diseases, resource and advocacy tools and information.
1012 14th Street NW
Ste. 500
Washington, 20005, DC
Accessible Location: No
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Conferences, Disability Specific, Medical, Resource/Lending Library |
| Services offered in Spanish? | yes |
| Newsletter? | yes |
| Child Care Available? | No |
| Age Range | All Ages |
| Disability Categories | Developmental Disability, Genetic or Congenital Disorder, Intellectual Disability, Learning Disability, Medical Condition, Physical Disability |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | http://www.globalgenes.org |
| Contact Name | |
| Email Address | careaboutrare@globalgenes.org |
| Phone Number | 949-248-7273 |