Their Equipment and Supply Exchange Program has been designed to help fulfill the equipment or supply needs of children with Krabbe and Leukodystrophy as well as help families place equipment and supplies that they are no longer using. They will cover the shipping cost to place the equipment with the family in need.
They offer a Wish Gift Program that helps families facing extreme financial stress attributed to the costs associated with caring for a child with Leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable a family to provide the best possible care for their child.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Genetic Disorder|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|
|Phone Number||716 667-1200|