Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related leukodystrophies. In addition, our mission is to strive to support and encourage those afflicted and their families as they struggle to endure, adjust, and cope with the demands of these fatal illnesses.
The Equipment and Supply Exchange Program has been designed to help fulfill the equipment or supply needs of children any kind of leukodystrophy, as well as help families place equipment and supplies that are no longer being used. HHF will cover the shipping cost to place the equipment with the family in need.
Also offered is the Ralph C. Wilson, Jr. Wish Gift Program (formerly known as Hunter's Wish Gift) which helps families who face extreme financial stress attributed to the costs associated with caring for a child with Krabbe or another leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child. Many times families come to the Foundation for assistance with a unique need – travel expenses associated with treatment, a wheelchair lift to enable a family to safely travel with their child, or assistance in purchasing a vehicle to accommodate their child’s equipment needs.
PO Box 643 Orchard Park
Orchard Park, 14127, NY
Accessible Location: No
|Type of Organization
|Disability Specific, Emotional Support
|Services offered in Spanish?
|Child Care Available?
|Genetic or Congenital Disorder
|Does this organization belong to all disabilities?
|This organization belongs to these diagnoses
|Is this a statewide service?