Our Mission: to improve the quality of life for individuals affected by chromosome 22q11.2 differences through family and professional partnerships.
This international group provides local and international contacts to provide support. There are resources for parents as well as teens and adults. There is also information for sibling support.
The International 22q11.2 Deletion Syndrome Foundation, Inc. with these goals: (1) improve detection; (2) care for families; (3) help drive awareness among clinicians, teachers and the general public; and (4) support research that would improve outcomes for affected individuals and their families.
Inc. PO Box 532
Matawan, 07747, NJ
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Disability Specific, Emotional Support, Other |
Services offered in Spanish? | No |
Newsletter? | yes |
Child Care Available? | yes |
Age Range | All Ages |
Disability Categories | Genetic or Congenital Disorder |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | 22q11.2 Deletion Syndrome, DiGeorge Syndrome, Velocardiofacial Syndrome, 22q11.2 Deletion Syndrome, DiGeorge Syndrome |
Is this a statewide service? | yes |
Website | https://22q.org/ |
Contact Name | |
Email Address | [email protected] |
Phone Number | 877-739-1849 |