The International Foundation for CDKL5 Research is the leader in CDKL5 patient education in the English-speaking world. Their free guides give families living with CDKL5 Deficiency Disorder the information and resources they need to help their affected loved one. They also partner with CDKL5 organizations around the world to adapt our guides to the educational and medical processes of their own countries.
P.O. Box 926
Wadsworth, 44282, OH
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Advocacy, Disability Specific, Emotional Support, Social Media, Volunteer Opportunity |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages , Birth - 3 , 3-5 , 6-11 , 12-14 , 15-21 , 22 and up |
Disability Categories | Developmental Disability, Genetic or Congenital Disorder, Intellectual Disability, Learning Disability, Medical Condition, Physical Disability |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | |
Is this a statewide service? | yes |
Website | http://CDKL5.COM |
Contact Name | |
Email Address | [email protected] |
Phone Number | 330-294-5005 |