Since 2004, Mended Little Hearts has provided patients and families of children with congenital heart disease many services that directly improve their quality of life. They are:
Group Programs—Peer Support and Education
Nothing can replace in-person connections with others traveling on a similar journey. MLH Group Programs allow families and patients to support each other in their local communities, share experiences and also get helpful information and resources.
Find a Group
Mended Little Hearts provides educational resources to give families and patients information they need to make important decisions and to care for their child in the hospital and at home. Key resources are:
The Mended Little Heart Guide Digital Version (English and Spanish)
Annual CHD Symposium
Empowering Parents to Make Healthcare Choices
Mended Little Hearts works with hospitals and healthcare professionals to provide these programs to support families when they need it the most:
Accredited Visiting Programs (where available)
Bravery Bag Programs
Bravery Chest Programs
In-Hospital Peer Support Services
CHD Awareness Initiatives
Most people are unaware that congenital heart defects (CHDs) are the most common birth defects in the United States. Mended Little Hearts has national and local CHD Awareness Initiatives so people have vital information and can get the support they need.
Health Education to Communities
Congenital heart disease professionals in the community provide helpful information at Mended Little Hearts group meetings, through workshops, seminars and at health fairs.
Mended Little Hearts volunteers support families and patients through Internet and phone outreach as well as by providing Web resources. Hospital stays and seclusion in the home can leave families and patients who have children with congenital heart disease feeling helpless and alone. These are ways to get support:
Mended Little Hearts advocates on issues that help families with CHD, such as newborn screening, CPR in schools, research funding, and improved surveillance of CHD patients.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Advocacy, Disability Specific, Emotional Support, Medical, Resource/Lending Library, Volunteer Opportunity, Other|
|Spanish Services Offered?||Yes|
|Child Care Available?||No|
|Age Range||All ages, Birth - 3, 3 - 5, 6 - 11, 12 - 14, 15 - 21, 22 and up|
|Disability Categories||Genetic Disorder, Medical Condition, Physical Disability|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses||Cardiomyopathy, Congenital Heart Disease, Congestive Heart Failure, Heart Failure, Heart Murmurs, Heart Transplant, Rheumatic Heart Disease|
|Is this a statewide service?||Yes|
|Email Address||[email protected]|