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They host regional face-to-face meetings with others experiencing the same challenges share support and information. Their Patient Information Center offers information about rare diseases and helpful resources and NORD's genetic counselors.
Online Only Service
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Disability Specific, Financial, Prescription Assistance |
| Spanish Services Offered? | Yes |
| Newsletter? | No |
| Child Care Available? | No |
| Age Range | All ages |
| Disability Categories | Genetic Disorder, Medical Condition |
| This organization pertains to all disabilities? | No |
| This organization pertains to these specific diagnoses | Phenylketonuria (PKU) |
| Is this a statewide service? | Yes |
| Website | http://www.rarediseases.org/patients-and-families/patient-assistance |
| Contact Name | |
| Email Address | |
| Phone Number | 203-744-0100 |