The Foundation is currently developing a much needed and groundbreaking public safety registry for medicines used to treat children with IBD. Read more about the Children’s REgistry for the Advancement of ThErapeutics , or CREATE registry here. The Foundation believes that providing cutting edge, trusted education to both physicians and patients is imperative to improving care of children with IBD. Physician education projects have included a highly acclaimed, online Continuing Medical Education disease-specific program developed and hosted by the Foundation. In addition, the Foundation currently emails a weekly roundup of the most current pediatric IBD related news, recently published medical literature and innovative research links. The pedsibd.org website was one of the Foundation’s first completed projects and the first of it’s kind to offer disease specific information directly related to pediatric care. This comprehensive patient/parent education website is particularly sensitive to the fact that a pediatric illness impacts the entire family and not the patient only. To this end, the Foundation’s website addresses this important issue by including information, tools and resources for both parents and patients.
199 Wells Avenue, Suite 301
Newton,, 02459, MA
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Advocacy, Medical |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Medical Condition, Physical Disability |
Does this organization belong to all disabilities? | yes |
This organization belongs to these diagnoses | |
Is this a statewide service? | yes |
Website | https://pedsibd.org/ |
Contact Name | Eric Zuckerman |
Email Address | [email protected] |
Phone Number |