They provide updates on new research, services and supports and can connect you with team members across the USA. Their facebook page(https://www.facebook.com/PruneBelly?fref=ts) can connect you to others affected by the syndrome to help you gain support and services. A blog was created for families to connect and tell their stories, post breakthroughs in medical science and pass on great programs across the nation.
P.O. Box 16071
, 19154, PA
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Counseling, Disability Specific, Emotional Support, Medical |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | Birth - 3 , 3-5 |
Disability Categories | Physical Disability |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Prune Belly Syndrome |
Is this a statewide service? | yes |
Website | http://prunebelly.org/ |
Contact Name | |
Email Address | [email protected] |
Phone Number | 855-275-7276 |