RareConnect includes disease-specific online communities that enable people living with rare diseases to meet, share stories and learn from each other. Communities are created in partnership with patient groups who bring resources such as moderators, relationships with specialists and validated information.
Find an online community for your area of interest. Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences. They have 153 rare disease communities with more to come soon!
Online Only Service
|Type of Organization||online support|
|Categories||Emotional Support, Medical, Other|
|Spanish Services Offered?||Yes|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Genetic Disorder, Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|
|Email Address||[email protected]|