By registering with Get Connected, it ensures that no matter where you go within the United States you will always have access to information about current advocacy initiatives, treatments, therapies and research studies for sickle cell, as well as, having all of your medical information stored in one secure online location.
You will also have access to patient providers and experts available in your community and throughout the United States. This allows you, or a hospital that is treating you, to have up-to-date medical data. Other benefits of this registry are newsletters, community forums, and other sickle cell specific information.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses||Sickle Cell Disease, Alpha Thalassemia, Beta Thalassemia, Hemoglobin C Disease|
|Is this a statewide service?||Yes|
|Contact Name||David Alexis|
|Email Address||[email protected]|