SWAN is a nonprofit tax exempt 501c3 organization that advocates for children and young adults who have syndromes without a name. They offer support, advice and information on the challenges that families face when there is no diagnosis. SWAN also advocates for changes in the medical community that will benefit undiagnosed individuals.
The SWAN Purpose
SWAN advocates for...
SWAN provides support to...
SWAN helps to address psychosocial concerns such as feelings of isolation, guilt, helplessness, frustration, emotional distress, etc.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Advocacy, Disability Specific, Emotional Support, Social Media, Other|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|