ChiariSupport.org is a dedicated patient-to-patient support community for families affected by Chiari Malformation. ChiariSupport.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Chiari Malformation.
If your family has been affected by Chiari Malformation, consider ChiariSupport.org your second home. ChiariSupport.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.
We don’t want you to identify yourself or tell exactly where you live: it is important to us that you should be anonymous here. That encourages openness
, TX
Accessible Location: No
Type of Organization | online |
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Categories | Disability Specific, Emotional Support |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages , 12-14 , 15-21 , 22 and up |
Disability Categories | Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Chiari Malformations |
Is this a statewide service? | yes |
Website | http://www.chiarisupport.org/ |
Contact Name | |
Email Address | Contact form online |
Phone Number |