Texas Prader-Willi Association

Our mission is to enhance the quality of life for all those affected by Prader-Willi Syndrome through education, support and advocacy.

Official membership in this organization gives you a way to meet other families who have a child diagnosed with Prader-Willi Syndrome.  It also gives you access to web pages with insight and information from other Texas parents. 

This includes but is not limited to the following: Birth to 3 years newly diagnosed check list,  3 years & older newly diagnosed check list, Board Meeting Minutes, Texas Group & Residental Homes for Prader-Willi Adults & Teens, Parent & Medical Resources, Nutrition information,and a forum for posting questions.

A full, safe and productive life for all affected by Prader-Willi Syndrome (PWS).

• Provide education, insight and spread awareness to all that are impacted by Prader -Willi Syndrome by addressing the needs through available resources.
• Advocating best practice standards of care for those who are living with Prader-Willi Syndrome.
• To inspire and encourage research into this unique and multifarious syndrome.
• To develop satellite support groups throughout the state of Texas.
• Provide an annual Prader-Willi specific camp for ages 8 and older.

Location

PO Box 592004, 14917 El Camino Real
houston, 77259, TX

Accessible Location: No

Details

See an Error? Suggest a Correction.