Information is available on the website and through social media. An Annual Family Conference is held every summer in varying locations.
Join the email list to get the latest Marfan-related news and updates delivered to your inbox.
The Kids Corner is designed for children and includes activities and games, videos, and more to help children understand Marfan syndrome.
Teen Space is the place for teens living with Marfan syndrome and related disorders to ask questions and get answers from medical professionals and other teens, share thoughts and ideas, share talents, and more.
22 Manhasset Avenue
Port Washington , 11050, NY
Accessible Location: Yes
|Type of Organization||Nonprofit (501c3)|
|Categories||Advocacy, Conferences, Disability Specific, Emotional Support, Social Media|
|Spanish Services Offered?||Yes|
|Child Care Available?||No|
|Age Range||All ages, Birth - 3, 3 - 5, 6 - 11, 12 - 14, 15 - 21, 22 and up|
|Disability Categories||Genetic Disorder|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses||Marfan Syndrome|
|Is this a statewide service?||Yes|