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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
Information is available on the website and through social media. An annual family conference is held every summer in varying locations.
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Teen Talk is a virtual social group for children ages 13-18 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions.
Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions is designed to increase opportunities for social interaction and connection with others who have a similar diagnosis.
Virtual groups are also offered for adults and seniors with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions.
22 Manhasset Avenue
Port Washington , 11050, NY
Accessible Location: Yes
| Type of Organization | Nonprofit (501c3) |
|---|---|
| Categories | Advocacy, Conferences, Disability Specific, Emotional Support, Social Media, Teen Activity, Other |
| Services offered in Spanish? | yes |
| Newsletter? | yes |
| Child Care Available? | No |
| Age Range | Birth - 3 , 3-5 , 12-14 , 15-21 , 22 and up |
| Disability Categories | Genetic or Congenital Disorder |
| Does this organization belong to all disabilities? | No |
| This organization belongs to these diagnoses | |
| Is this a statewide service? | yes |
| Website | http://www.marfan.org/ |
| Contact Name | |
| Email Address | |
| Phone Number | 516-883-8712 |