The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. The Foundation is located in DeKalb, Illinois.
OUR MISSION is to provide support to the leukodystrophy community and enable platforms to accelerate improving patient quality of life and finding cures.
OUR VISION is to meet the needs of patients and families, whether newly diagnosed or living with a leukodystrophy. Through unified collaboration with advocacy groups, medical and research professionals, and pharma/biotech companies, we provide support, networking, and education to help navigate the journey of the disease.
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Conferences, Disability Specific, Emotional Support|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Genetic Disorder|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses|
|Is this a statewide service?||Yes|
|Email Address||[email protected]|
|Phone Number||800 728-5483|