The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. The Foundation is located in DeKalb, Illinois.
MISSION is to provide support to the leukodystrophy community and enable platforms to accelerate improving patient quality of life and finding cures.
VISION is to meet the needs of patients and families, whether newly diagnosed or living with a leukodystrophy. Through unified collaboration with advocacy groups, medical and research professionals, and pharma/biotech companies, we provide support, networking, and education to help navigate the journey of the disease.
224 North Second Street, Suite 2
DeKalb, 60115, IL
Accessible Location: No
|Type of Organization||Nonprofit (501c3)|
|Categories||Child Care, Conferences, Disability Specific, Emotional Support|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages|
|Disability Categories||Genetic or Congenital Disorder|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses|
|Is this a statewide service?||yes|
|Email Address||[email protected]|
|Phone Number||800 728-5483|