How can one small person need so many things? That was my thought when my kids were babies. Everything was so ridiculously expensive. And some of those items were not a necessity. I mean, our baby could have survived without the Jumperroo or the Exersaucer. Of course, there were many things that were a necessity. It seemed as if that stuff completely took over the house!
None of that compares with the equipment and other things my child with a disability needs. They are necessities and the price tags are definitely out of reach. Eventually, things like a wheelchair, stander, and car seats can be obtained. If you have health insurance, that sure can help.
Working with health insurance is not easy. Talking with other parents may help you understand the process and skip some of the pitfalls. There will have to be letters from doctors and therapists, prior authorizations, and paperwork. Oh, and lots of waiting. Make sure to keep calling your insurance company to get updates on the progress of your claim.
If you do not have health insurance, be sure to check online. There are many organizations that have low-cost programs or make donations. Ask around. So many groups are willing to help. But you must search and reach out to them.
My daughter’s first chair was given to me by a friend of a friend. Her stander was donated and so was her car seat. Her second wheelchair was paid for by her insurance—that was a battle because it had not been 5 years between chairs like they want it to be.
Remember, keep pushing for what your child needs, in the end, you will be glad that you did!
There is more information available in the Supplies and Medical Equipment for Children with Disabilities section and under Grants and Funding for Children with Disabilities.
During the COVID-19 pandemic, we asked parents of children with disabilities and special health care needs to share their tips and stories about caring for their children during difficult times.