“What’s wrong with your child?” are the hardest words to hear. Finding a diagnosis for your child is one step in the right direction. Navigating the various challenges your child will face can be overwhelming. Keep showing up and facing the challenges.
Categories: Diagnosis & Health Care, Family Support
A new doctor means lots of questions to answer and ask. Here are some suggestions to help you prepare.
Categories: Diagnosis & Health Care
What is genetic testing? Genetic testing can help doctors look for changes in genes that may cause disabilities, rare diseases and undiagnosed conditions.
Categories: Diagnosis & Health Care
In our family, graduating from ABA Therapy after seven years is an even bigger milestone than graduating from high school.
Categories: Diagnosis & Health Care
When it comes to your child and their medical needs, there is no such thing as a dumb question. Here’s how I think about asking questions in medical settings as a parent of a child with a disability and a nurse.
Categories: Diagnosis & Health Care
We forget how the medical world has changed with COVID.
Categories: Diagnosis & Health Care
When thinking about the transition to adulthood, health care is often overlooked.
Categories: Diagnosis & Health Care
I was lucky to be able to get my daughter in and out of our vehicle throughout her life. However, many children with medical complexity require ambulance transportation to get to and from appointments.
Categories: Diagnosis & Health Care
Finding the person with whom you and your child can share your most vulnerable feelings is a tough but worthwhile process.
Categories: Diagnosis & Health Care, Family Support