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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
When your child is admitted to the Pediatric Intensive Care Unit (PICU), it is a stressful time. The environment and care level is just that, intensive. The rules are different and take some learning and adjustment.
Our son has a long list of diagnosed conditions and some only came about because of our pursuit to find answers.
If you are a parent of a child with disabilities, then you probably know very well about the various designated awareness months for the different disabilities. But awareness really comes in surprising moments.
As a parent of a child with a disability, we often must learn little tricks to get things done and some can be total game changers. Here are a few tips to help in the day-to-day challenges many of us face.
Communicating with your child’s doctors, nurses, therapists, etc. is always important. When talking about things your child needs or dealing with issues you feel may be harmful for your child, it’s easy to get emotional. Being able to build a healthy relationship with your child’s care team and communicate openly and honestly is key. Here are a few tips that may help.
When you get good news about your child who has a degenerating medical condition, the joy you experience is amazing.
Here are one mom’s suggestions for being prepared for an emergency room visit for your child.
It can be hard to get the many medical providers in your child's life to talk to each other. How can you make sure everyone is rowing in the same direction? Here are some helpful tips.
Parents of children with disabilities must make a difficult decision of whether or not to medicate their children to help them through their daily lives.
Adding or changing to a new doctor means answering lots of questions about your child’s medical history. There is so much to remember. It’s not possible to keep it all in your head. Creating a care notebook that you can share with a health care provider makes it easier for everyone.