This group assists patients, families and medical professionals by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to bladder exstrophy. They have a yearly conference and offer "Living with Bladder Exstrophy" Webinars.
Connect on Facebook:" https://www.facebook.com/AssociationfortheBladderExstrophyCommunity/".
204 37th Avenue North, Suite 157
Saint Petersburg, 33704, FL
Accessible Location: No
Type of Organization | Nonprofit (501c3) |
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Categories | Disability Specific, Emotional Support |
Services offered in Spanish? | No |
Newsletter? | No |
Child Care Available? | No |
Age Range | All Ages |
Disability Categories | Medical Condition |
Does this organization belong to all disabilities? | No |
This organization belongs to these diagnoses | Epispadias, Exstrophy of the Bladder and Epispadias |
Is this a statewide service? | yes |
Website | https://www.bladderexstrophy.com/ |
Contact Name | |
Email Address | [email protected] |
Phone Number | 425-941-1475 |