This group assists patients and families by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to bladder exstrophy. They have a yearly conference and offer "Living with Bladder Exstrophy" Webinars.
Connect on Facebook:" https://www.facebook.com/AssociationfortheBladderExstrophyCommunity/".
Online Only Service
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Spanish Services Offered?||No|
|Child Care Available?||No|
|Age Range||All ages|
|Disability Categories||Medical Condition|
|This organization pertains to all disabilities?||No|
|This organization pertains to these specific diagnoses||Epispadias, Exstrophy of the Bladder and Epispadias|
|Is this a statewide service?||Yes|