This group assists patients, families and medical professionals by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to bladder exstrophy. They have a yearly conference and offer "Living with Bladder Exstrophy" Webinars.
Connect on Facebook:" https://www.facebook.com/AssociationfortheBladderExstrophyCommunity/".
204 37th Avenue North, Suite 157
Saint Petersburg, 33704, FL
Accessible Location: No
|Type of Organization||Nonprofit (501c3)|
|Categories||Disability Specific, Emotional Support|
|Services offered in Spanish?||No|
|Child Care Available?||No|
|Age Range||All Ages|
|Disability Categories||Medical Condition|
|Does this organization belong to all disabilities?||No|
|This organization belongs to these diagnoses||Epispadias, Exstrophy of the Bladder and Epispadias|
|Is this a statewide service?||yes|
|Email Address||[email protected]|