Over the years, I have tried to stay organized and keep medical records up to date for our son, Jackson, just in case I must go to the hospital for an unexpected stay. Recently, we had to resort to my medical care planning documents and I’m glad we had them.
After getting the idea from a friend who keeps her family’s medical records organized, I updated a folder with my son’s medical information. My husband is a very hands-on dad, but he isn’t as familiar with the details of our son’s medications, doctors, state programs, etc. I wanted to make sure he had everything he needed to manage Jackson’s medical care if I wasn’t there to help.
With any child with multiple disabilities, I think it’s a great help to have one place where you have medical resources such as doctors’ names and contact information. Here is my binder system:
This system gives me a little peace of mind and helps my husband if and when he needs to be in charge of Jackson’s care. Here is more information on creating a Care Notebook.
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.