July 19, 2018 | By: Jennifer Jordan
Categories: Family Support, Education & Schools, Transition to Adulthood
I get angry sometimes. I get angry at our system. I get angry that we must fight for our children to be included. Fight for something that is their right, to be part of society. I get angry that at age 3, my son has been segregated. I get angry that something as easy as going to school isn't. I get angry because some people don't think our kids are ‘good enough’ because they have a disability.
There are a few articles, books, and films that helped me when we first started our journey.
After I had my son, my views changed even more. After he started school, I was even more sure that inclusion was the right way. I’ve learned so much over the years. It's a never-ending process of growing and learning.
Here are some materials that helped me:
Why Inclusion Begins in Kindergarten...Or Doesn't by Charlene Comstock-Galagan. Charlene is a Texan who has worked on inclusive practices for many years.
Outing the Prejudice: Making the Least Dangerous Assumption. This article talks about assuming that people with disabilities can achieve a goal rather than assuming they can not. Assuming people are capable rather than they are not.
Out of My Mind by Susan Draper is a fictional book written for middle school-aged children. Although it is an easy-to-read fictional book, it is very powerful. The girl in the story has cerebral palsy. She uses a wheelchair and is non-verbal. She knows and understands the world around her. But since she can’t talk, no one believes she can learn.
Including Samuel is a documentary by Dan Habib which I watched when my son was a little over 2 years old. It changed my life. Dan Habib has a son with cerebral palsy. The film records their story and 4 other families and their experiences with inclusion.
I struggle when I see videos of kids with disabilities being celebrated for taking part in activities. But not for the reasons you might think.
Categories: Family Support
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.
Categories: Diagnosis & Health Care, Family Support
In times of crisis, maintaining routine and familiarity are vital for our children, especially those with specific health care needs.
Categories: Family Support