Listening and learning from adults with disabilities helped me learn so much about my son and his future.
Categories: Family Support, Transition to Adulthood
I struggle when I see videos of kids with disabilities being celebrated for taking part in activities. But not for the reasons you might think.
Categories: Family Support
For the past two years, my son has been in a full-time therapy program, so he’s been out of the school district. He’ll be back in this fall, and I will be honest with you—I’m really nervous about it.
Categories: Family Support
My son is 7-years-old and still drinks from a bottle. We didn’t plan this, and we have tried to work around it. But the bottle gives him the flow control he needs to digest liquids properly.
Categories: Diagnosis & Health Care, Family Support
I’ve been having a lot of conversations with therapists about my son’s progress and the things we need to work on.
Categories: Family Support
I had a terrifying thought the other day: I’m not doing enough to teach my son that his body is his to control.
Categories: Family Support
I’ve been thinking a lot about how we, as parents, learn about disability. The people we talk to greatly impact our experience.
Categories: Family Support
There is one thing they don't tell you about having a child with a brain injury. It is probably the hardest part of parenting a child with disabilities. It’s the lack of consistent sleep. Man, I’m tired.
Categories: Family Support
I’ve realized that parenting, for me, is managing guilt. Guilt about not doing enough, guilt about not giving my kids enough...just silly doubts in my mind that I need to silence from time to time.
Categories: Family Support
My son was born with spastic quadriplegic cerebral palsy (CP). His entire life we’ve been working under the assumption that this diagnosis was our primary focus. Until we discovered it wasn’t anymore.
Categories: Family Support