July 20, 2023 | By: Cindi Paschall
Categories: Family Support
Children, disabled or not, want to live life on their terms. This often requires us, as parents or caregivers, to step outside of our comfort zone and allow our children to explore and take calculated risks. It’s necessary to allow children the chance to grow through experience and sometimes failure. Stressors of raising a child are often amplified for parents or caregivers of children with disabilities.
We often second-guess ourselves. Will my child be safe? Will my child be accepted as they are? Will my child have fun? Will my child need accommodations that aren’t provided? Will my child be allowed to take part if modifications are needed? Am I making a political statement, or do I have my child’s best interest at heart?
Regardless of our concerns, there comes a point where we must let go and get out of the way! We must give our children the ability to grow and expand their opportunities for growth. It may not be easy, but with planning, it is achievable.
Of course, it’s good to plan and advocate for your child, but standing in the way can be detrimental to growth. It can also limit their opportunities to:
All life experiences come with some form of risk. We parents must get out of the way and allow for those necessary risks. As we work on accepting risk for our children, Person-Centered Thinking can be a helpful framework.
Over the years, parents of children with disabilities and special health care needs have told us many stories about dealing with bias, unfairness, racism, ableism or discrimination against their child.
Categories: Family Support
As technology advances, it brings exciting possibilities and challenges.
Categories: Family Support
As the parent of a child with mild Cerebral Palsy, I learned that the word “hurry” doesn’t apply to my son, Jason. With motor planning difficulties, hurrying just wasn’t something he could do. I learned to adapt and accommodate our schedule to allow extra time. However, when I found myself in the situation of caring for elderly parents & parents-in-law, and our son, I struggled to find the patience I once had with Jason.
Categories: Family Support