Parents of children with special healthcare needs are often the sole caregivers of their child. When mom and dad live together, they often take turns taking care of the child at home or taking them to appointments or therapies. Many families may have only a mom or dad. In either of these scenarios, the stress of not taking a “break” from this responsibility can be overwhelming.
It is important that parents create a strong support system around their child. It becomes a juggling act when parents try to accomplish everything on their own. Many parents have expressed their concern about other people being their child’s caregiver. This is a valid concern.
Many children require that the caregiver has knowledge of many health and behavioral-related skills. And some parents may find it hard to trust someone other than themselves to provide care for their child. It is important to open our minds and our hearts when looking for that right person that we can trust and rely on for when we need a “break.”
Here are some ideas for finding caregiver help so you can take that needed and important break:
Finally, here are a few very important things to make sure you do once you find someone to help care for your child:
However you plan, please make sure that you are taking a break occasionally. Everyone needs to get away to refresh and reenergize. Do not feel guilty for not being with your child 24/7. A refreshed caregiver is much more effective that someone that is burned out and stressed. Take care of yourself so that you can take care of others.
This article discusses the emotions and coping mechanisms that go along with having a child with a life-threatening disease that is very complex and confusing.
My young son had multiple psychological diagnoses and his behaviors were out of control.