Parents of children with disabilities need to put more effort into planning for the future than parents of children who do not have a disability. And parents of children with disabilities need to start that planning earlier than other parents. As your child approaches adulthood, there are many new things to consider, decisions to be made and tools to help you make them. But where do you start? The questions below and links to resources will provide some guidance.
What is important to my child? (happiness, fulfillment, contentment, satisfaction, comfort)
What is important for my child? (health, safety, valued member of community)
Where will my child will:
How can I help my child create social capital – make friends, build a community?
What day-to-day support will my child need?
Can my child benefit from assistive technology or adaptive aids?
Will my child need publicly funded benefits or long-term services and supports?
What does the transition to adult healthcare look like?
What graduation plan is best for my child?
How can I support my child’s self-determination and self-advocacy?
The Individuals with Disabilities Education Act (IDEA) requires transition planning to start at age 14. I encourage you to start now! The future happens based on what you do TODAY!! Without a vision, without goals, you are unable to create a plan and take steps to get there.
My daughter is 27 years old. She has Down Syndrome and intellectual and developmental disabilities. I obtained guardianship for her just last year. Here’s how and why our family decided to shift from the least restrictive legal guardian option to the most restrictive option.
Categories: Transition to Adulthood
Listening and learning from adults with disabilities helped me learn so much about my son and his future.