Navigate Life Texas: Resources for kids with disabilities and special needs

Navigate Life Texas: Resources for kids with disabilities and special needs

All in a Month’s Work

08/09/2017 | Published by: Kelly Mastin

Raise your hand if life has ever felt overwhelming. Raise your hand if you feel overwhelmed right now! Life is hard. It is busy and full of demands.

As a mom to kids with disabilities, I often feel like I’m drowning in the stresses of life. It is hard to accomplish much when I feel like I’m just fighting to breathe or to drag myself out of the bed in the morning.

But it helps me to step back, take a look at life, and come up with a plan to keep moving forward. While I sometimes struggle with making plans or setting goals that are too lofty, I have learned that setting reasonable goals for myself and my family is a better approach.

Here are some goals for me and my family to accomplish each month. Perhaps my list will encourage you to set some monthly goals for your family, as well.

1. Do something social with a friend.

Friendship and social life are so important to our overall health. Plan something and do it.

2. Attend at least one training.

This is important for several reasons. It is vital that we all keep the mindset of always learning. As a family living with disabilities, there are always things we need to learn. I attend at least one training a month on disability, advocacy, or special education. It can be in-person or an online webinar.

3. Increase my child’s independence (think small!).

We are always working towards more independence, and we must be deliberate about it. I might add a small step like helping them push a drawer closed or holding their own cup for a couple of drinks. One month I might add taking their plate to the kitchen; the next month, putting the plate in the sink; then rinsing the plate. I might set a goal to show some effort on their part when I’m pulling a shirt over their head. Keep the goal small and attainable.

4. Organize one thing in my life.

Again, this can be something small. Maybe it’s a sock drawer, cookie sheets, or the glove compartment in my car. But do something to help the clutter and chaos.

5. Give back.  

It is so fulfilling. I like to make a meal for an ill friend or buy a fountain drink for the teacher at school. Volunteering fits into this category, too. When my life is difficult, it helps me to deliberately turn my sights to others each month.

As you see, these goals do not need to be lofty and grandiose. Remember to make a plan that works for you and to set goals that are meaningful to your family – they should be very different than mine. Always be ready to edit the plan when necessary. Be sure to give yourself grace when you miss the target.

Find more information on this website about daily living and helping your child toward independence. Search the blog articles to learn from other families’ experience and advice.


Read More Posts from Family Support

Hole in the Wall

Many families live with mental illness. One mom tells the significance of the hole her teenage son punched in the wall.

Snowflakes and Milestones

Parents have different ways of celebrating their children’s milestones. Often, parents who have a child with a disability celebrate the tiniest of milestones. It’s just a difference in perspective.

Review of Speechless on ABC

A review of the new ABC sitcom, Speechless—what the show is doing right and what the show is missing.