March 29, 2016 | By: Beth Coke
Categories: Family Support
For those of us who have children with disabilities, we sometimes forget what life was like before––when life wasn't about doctor’s appointments, medical equipment, therapists, respite and where to get it, guilt and how not to feel it, and a level of exhaustion you did not know was possible.
When the brothers or sisters are older than the child with a disability, it can be very difficult for them to forget a simpler life. Younger siblings don't seem to have quite the same struggle because this is the only life they've known, though they still struggle from time to time.
For older siblings––the ones who take so much upon themselves, who have to grow up far too soon, who are aware life isn't fair, and who know that sometimes we are dealt a very difficult hand––the road can seem especially long. They are put in a position no one would envy and they give so much. Raising a child with disabilities can be very difficult for a mom or dad to understand, but it can be impossible for an 11-year-old to process.
So on this Siblings Day (April 10), please take time to hug all of your children. Remind them they are all special, and thank them for everything they do and all they give every day. Also, give them permission to say it's hard, that they don't like it, and that they wish things were different. We all do. But sometimes just having said it out loud can make all the difference in the world.
You can find more information about siblings on the Siblings of Children with Disabilities page on this site or watch the Siblings video.
Parenting a child with a disability is a journey, not a destination. Some people have been dealing with this since their child was born. Some people have joined the journey later in their child’s life.
Categories: Family Support
So much I've written about focuses on my child's autism spectrum disorder and ADHD challenges. For just this moment, I want to focus on the absolute, beautiful joy of being his mom.
Categories: Family Support
It’s easy to get caught up in the social challenges that children with disabilities face. But when we consider the progress made over the last 80-90 years, we can be grateful for how far we have come.
Categories: Family Support