Finding Support

Raising a child with a disability can be lonely. It can be scary and overwhelming. Sometimes we feel like no one understands. We all have our own journey, but we can still help each other along the way.

Here are some suggestions on finding support:

• Facebook—There is a Facebook group for everything. You can join a disability-specific group. You can join a general disability group. You can search for groups that meet whatever needs you have. Online friends have a way of making us feel less alone.
• Volunteer—Volunteer with a local disability group. One example is your local Arc. I have learned so much from volunteering. I have met some amazing people, too. Or volunteer at your child’s school. This is a great way to advocate for your child. You can be the voice for making sure students with disabilities are included in all activities at school.
• Parent Groups—Join a local parent group. Even if you’re not talking about disability, sometimes it’s nice just to be around other adults. Can’t find a group? Start one. Many people are looking for their tribe.
• Find a hobby—Is there something you love doing? Maybe it’s knitting or reading. Maybe it’s hiking or jogging. Find time to enjoy what you love.
• Blog—Do you like to write? Start a blog about your experience as a parent to a child with a disability. Writing out our feelings can be great for healing.
• Become an Advocate—Is there something your passionate about? Is inclusion important to you? What about health care? Maybe accessibility in the community is something you feel strongly about. Standing up for something you believe in is powerful. It gives you something else to focus on.
• Self-Care—Find time for you! Go get your nails done. Get your hair done regularly. Go have coffee by yourself. Take a walk in the park. Do something on a regular basis that makes you feel good.

We have to find time to recharge and connect. Community can be a beautiful thing. It’s so hard to find the time, but it is so worth it. If you feel better and connected, you can be a better parent.

Here are more ways to connect with other parents.