Raising two young children with disabilities was at times overwhelming. I worried a lot. Would I be equipped to meet their complex learning needs? What resources were available to help me navigate the road ahead? How would I prepare them for life after high school?
Looking back, I realize some of the most helpful information and guidance I received in those early years was from other parents. So, now that my children are older, I’d like to share some of my favorite resources and suggestions.
While no two parents will have the same “Top 15” list, sharing our personal experiences and resources is so important to helping other families of children with disabilities. I hope one day that you will share your “Top 15” list. After all, we are all on this journey together.
Deciding to put your child on a medication is a tough decision. But a change in perspective helped our family with their decision.
We have all found ourselves, at one point or another, comparing our child or our situation to another. The grass is always greener and you want what you can’t have—all phrases we have heard. Sometimes we must remind ourselves that we are all doing the best we can and we need to support one another and focus on the similarities, not the differences.
With every passing year in the world of being a parent of a child with special health care needs, you have the day to day struggles, the fun holidays, and some surprises. Good and bad.